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What Challenges Do Family Caregivers of Adult Children With Autism Face?

Christina Marsack-Topolewski, PhD, LMSW

March 1, 2024

Question

What challenges do family caregivers of adult children with autism face?

 

Answer

Family caregivers, as noted by Marsack & Perry (2018), Marsack-Topolewski (2020), and Marsack-Topolewski & Wilson (2021), encounter multifaceted day-to-day challenges. These challenges, which include physical and emotional aspects, contribute to the complex caregiving landscape. The physical strain experienced by family caregivers, particularly those in their seventies engaged in demanding tasks like lifting, is a critical concern. Occupational therapy practitioners play a vital role in addressing these challenges by providing practical solutions and recommendations, emphasizing the significance of collaboration between social workers and OTPs. This collaboration ensures a holistic approach to caregiving support, addressing the immediate physical challenges and the emotional well-being of family caregivers.

 

This Ask the Expert is an edited excerpt from the course Aging Caregivers: What To Know And How To Best Provide Support by Christina Marsack-Topolewski, PhD, MSW, LMSW.


christina marsack topolewski

Christina Marsack-Topolewski, PhD, LMSW

Dr. Christina Marsack-Topolewski is an associate professor of Social Work in the College of Health and Human Services at Eastern Michigan University. Dr. Marsack-Topolewski received her PhD in Social Work with a dual title in Gerontology from Wayne State University. She has worked with individuals with various intellectual and developmental disabilities (IDD) for 20 years. Her research focuses on individuals with autism and other neurodevelopmental disabilities, their caregivers, advanced care planning, the service delivery model, and service utilization. She has over 90 publications in national and international journals and encyclopedias, mainly focusing on individuals with IDDs, caregiving, and services and supports. In addition, she has presented her work locally, nationally, and internationally.


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