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Back to Basics: Guidelines for Management of Communication in Rett Syndrome

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1.  The potential to communicate: Is frequently underestimated in Rett syndrome Is frequently overestimated in Rett syndrome Must be measured before implementing intervention Is demonstrated through verbal language

2.  Individuals with Rett syndrome should be supported by a multidisciplinary team that includes: The therapy team The individual with Rett syndrome Parents or other communication partners All of the above

3.  Professionals who work with individuals with Rett syndrome should: Seek specialist knowledge and expertise in the area if they are inexperienced Connect with the other members of the broader team who are working with the individual and family so that support and advice and recommendations are coordinated Train other communication partners in communication techniques and strategies that will benefit the individual with Rett syndrome All of the above

4.  A strategy that can assist an individual with Rett syndrome to respond to communication requests would be: Asking questions multiple times so that they understand the request Offering choices quickly Offering extended wait time Offering yes/no choices only

5.  Standardized assessments of language and cognition: Are considered a valid measure in individuals with Rett syndrome Are likely to indicate that individuals with Rett syndrome have an intellectual disability Cannot be adapted to use with individuals with Rett syndrome Are the preferred measure to evaluate communication in Rett syndrome